If your personal privacy information is not publicly distributed without your consent, you will be very angry, but if someone has a good subsidy fee, you can purchase this information for research and development of pharmaceutical companies and research institutions, such as Personal genetic information, are you willing? Recently, a technology company called Nebula Genomics started the business.

Let me talk about the "origin" of this business.

As a science that characterizes the human genome sequence, genomics has been placed on the promise of improving modern medicine and improving public health. It allows scientists to accurately diagnose rare conditions and better understand difficult diseases such as cancer. The pathology and help medical researchers develop new drugs that are better, more targeted, and have fewer side effects. In addition, genomics is expected to improve public health care in developing countries, allowing health workers to better understand and treat infectious diseases and prevent the spread of the epidemic.

However, such large medical research requires the establishment of large genetic databases that require many volunteers to provide genetic data that is easy to share and easy to analyze. To date, more than one million people have accepted gene sequencing , but many people are reluctant to disclose their data based on concerns about personal privacy leaks, so researchers still complain that the shortage of genomic data has hampered their research.

How to make more people will share their genetic data to enrich the researchers' databases, Nebula Genomics Technology believes they have thought of a solution to the problem.

Nebula Genomics' idea is not only to allow customers to access gene sequencing services, but also to benefit customers, provided that they must agree to share your personal genetic information with researchers or pharmaceutical companies.

It is understood that Nebula Genomics' goal is to combine the two most popular technologies, gene sequencing technology and a blockchain platform that supports cryptocurrency like Bitcoin, and consumers get it at a more affordable price. Nebula's genetic testing services, after acquiring these genetic data that incorporates blockchain technology, enable consumers to achieve precise control over their genetic information authorization. They can either choose to keep the data themselves or they can choose to They are sold to medical researchers, for example, if the consumer's genetic information is special, or if there is a special medical history that can be of interest to researchers, they can choose to sell their genetic information and receive appropriate subsidies.

Kamal Obbad, co-founder of Nebula Genomics, said that the company's early customers and "characteristic" customers with genetic information will get a "significant amount of money" after sequencing the gene.

However, Nebula Genomics also believes that making money should not be the most important factor for people to share personal genetic data, but to make people realize that the individual's sharing behavior will help more researchers to conduct research. And ultimately beneficial to some patients with diseases.

For medical researchers, Nebula Genomics can bring more benefits than just getting more genetic data. It also includes a more convenient way to access genetic data.

A big problem with early genomics is that they need to store too much data. Each genome contains about 3 billion words of information, which makes the sharing and downloading of genetic data extremely slow.

Nebula Genomics said it will handle the problem of how to store such a large amount of data in the cloud, making it easier for researchers to analyze.

Stephan Beck, who studies pharmacogenomics at the University of London School of Cancer Research, said: "I think many people will be interested in the solution proposed by Nebula because it solves problems we have not been able to overcome, although I still think it has yet to be verified. But whether or not it succeeds, it at least presents us with a very specific plan and is expected to solve the very basic problems we face."

Nebula Genomics also said that their model would broaden the genomics pool of scientists engaged in research, making the scope of research not only limited to wealthy Americans and Europeans.

Stephan Beck agrees with this view: At present, one of the problems we have encountered in genetic data is that there are too many genetic data in some groups, while the genetic data in other groups is very scarce. The wealthy social entity, Nebula Genomics's subsidy approach, will attract such groups to share their genetic data. "

However, not everyone agrees with this model of Nebula Genomics. Ewan Birney, director of the European Bioinformatics Institute, said: The scheme proposed by Nebula Genomics is actually very American, like the United Kingdom, Denmark, France, Finland. They have now established a strong genomic database, and the situation in the United States and Europe is very different."

Sobia Raza, head of science at the PHG Foundation, a think-tank of the University of Cambridge's health policy, is also cautious about this: "Nebula has come up with a very interesting concept in terms of convenient data analysis methods, but I feel it based on my own personal opinion. The actual performance is skeptical, and whether the model proposed by Nebula is useful to individuals, companies or researchers seeking genetic information, remains to be seen."

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